Patient Day is held to honor patients with rare diseases. Please join us for a "Super Hero" themed day of live music, food, games, refreshments and to meet people dedicated to working on rare disease treatments. Children are more than welcome to attend!


Live Music, Bounce Houses, Face Painting, Balloon Artists, Food Trucks and More!





Guests are welcome and a link will be provided for guest registration once the initial registration is completed.







Travel A limited number of travel scholarships will be given. Requirements are as follows:


Be a patient who is not participating in select Ultragenyx or Audentes sponsored clinical trials, or

Be a family member of a patient, or

Be involved in a patient organization


For questions regarding travel scholarships, please contact Global Genes at events@globalgenes.org.



11:00 am

Food, Games, Activities

12:30 pm to 1:30 pm

Presentations on Stage

1:30 pm to 4:00 pm

Entertainment, including Live Music

Here are some photos from Patient Day 2017!


For any registration questions, please contact:

Patient Day Registration Day Team (415) 695-​8001 (844) 304-​0012 patientday@keyevents.com