Welcome                

Welcome

 

Patient Day is held to honor patients with rare diseases. Please join us for an “Earth Day" themed day of food, games, refreshments, live music and to meet people dedicated to working on rare disease treatments. Children are more than welcome to attend!

 

Bounce Houses, Face Painting, Balloon Artists, Live Music, Food Trucks and More!

 

 

 

 

Guests are welcome and a link will be provided for guest registration once the initial registration is completed.

 

Schedule

 

 

 

 

Travel A limited number of travel scholarships will be given. Requirements are as follows:

 

Be a patient who is not participating in select Ultragenyx or Audentes sponsored clinical trials, or

Be a family member of a patient, or

Be involved in a patient organization

 

The deadline for scholarship consideration is February 20, 2017.

 

For questions regarding travel scholarships, please contact Alex at Global Genes, events@globalgenes.org.

 

Key Events Inc. is the designated event management agency for this event. For event or registration questions please contact The Registration Team at PatientDay@keyevents.com.

 

11:00 am

Food, Games, Activities

12:30 pm to 1:30 pm

Presentations on Stage

1:30 pm to 3:00 pm

Entertainment, including Live Music

 

For any registration questions, please contact:

Patient Day Registration Day Team (415) 695-​8001 patientday@keyevents.com

 

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